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Children will lose sight, Canadian family undertakes world tour to see as many countries as possible (PHOTO)

2022-09-12 19:39:53Lifestyle SHKRUAR NGA REDAKSIA VOX
Children will lose sight, Canadian family undertakes world tour to see as many
Canadian family

Their daughter Mia was just three years old when Canadian couple Edith Lemay and Sebastien Pelletier first noticed she had vision problems.

A few years after they first took her to a specialist, Mia, the oldest of their four children, was diagnosed with retinitis pigmentosa, a rare genetic condition that causes vision loss or decline over time.

At this point, Lemay and Pelletier, who have been married for 12 years, had noticed that two of their sons, Colin, now seven, and Laurent, five, were experiencing the same symptoms.

Their fears were confirmed when in 2019 the boys were diagnosed with the same genetic disorder; their other son Leo, now nine, was given the all clear.

"There's nothing you can do," Lemay says, explaining that there is currently no cure or effective treatment to slow the progression of retinitis pigmentosa.

"We don't know how quickly the condition will go there, but we expect them to be completely blind by the middle of their lives."

After coming to terms with the news, the couple turned their attention to helping their children build the skills they would need to navigate their lives.

When Mia's specialist suggested they create "visual memories," Lemay realized there was a truly incredible way they could do this for Mia and the other children.

"I thought, I'm not going to show her an elephant in a book, I'm going to take her to see a real elephant. And I'm going to fill her visual memory with the best, most beautiful images I can."

She and her husband soon began making plans to spend a year traveling the world with their children.

While Lemay and Pelletier often traveled together before becoming parents and had taken their children on various trips, going on an extended trip as a family hadn't seemed feasible before.

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